Understanding Autism Masking and Its Consequences (2024)

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Hiding who you are is an uncomfortable and exhausting experience. For many autistic people, that experience is a daily reality.

In places where the full spectrum of neurodiversity is not understood or welcomed, autistic people often feel the need to present or perform social behaviors that are considered neurotypical. Some people may also feel they have to hide neurodiverse behaviors in order to be accepted.

Masking autism may sometimes help protect autistic people from being “outed” or harassed at school or work. This behavior is not always intentional which can lead to confusion about a person’s identity.

Regardless of intentionality, masking can also lead to serious health consequences, so it’s important to understand the behavior and its effects on people who regularly mask their neurodivergent behaviors.

Masking, which is also called masking or compensating, is a social survival strategy. How it looks will vary from person to person, but masking can include behaviors like these:

  • forcing or faking eye contact during conversations
  • imitating smiles and other facial expressions
  • mimicking gestures
  • hiding or minimizing personal interests
  • developing a repertoire of rehearsed responses to questions
  • scripting conversations
  • pushing through intense sensory discomfort including loud noises
  • disguising stimming behaviors (hiding a jiggling foot or trading a preferred movement for one that’s less obvious)

People may mask autism for a variety of reasons, such as:

  • feeling safe and avoiding stigma
  • avoiding mistreatment or bullying
  • succeeding at work
  • attracting a romantic partner
  • making friends and other social connections
  • fitting in or feeling a sense of belonging

Although masking can look different from person to person, one study has described a basic three-stage model of the process: motivation, masking, and consequences.

Masking begins when a neurodivergent person recognizes that something important hinges on being perceived as neurotypical. Maybe it’s friendship. Maybe it’s a job opportunity. Maybe it’s personal safety.

Whatever the motivation, an autistic person may feel they must hide differences or change the way they naturally act — often because their living or working environment doesn’t tolerate, support, or respect neurodivergent behaviors.

When people feel they have to compensate for autism characteristics, they have to invest a lot of time and energy in trying to “pass” as neurotypical. They might:

  • learn social cues from various forms of media
  • observe social interactions between people around them
  • monitor their own facial expressions and body language
  • research social rules and norms
  • practice appearing interested or relaxed
  • adjust their tone of voice to match other people’s vocal patterns

Equipped with these observations and skills, an autistic person can then use them in social situations to varying effects. Some people are so effective at masking that no one can tell they’re pretending or performing. Others are less effective at masking.

Either way, the cognitive and emotional effort affects people’s mental and physical health. People who mask regularly often say they feel drained and exhausted by the effort of trying to conform to neurotypical standards of behavior.

People across the entire gender spectrum engage in masking, studies show, but people who identify as women may mask more often than people who identify as men.

There’s been some debate about why girls and women may mask autistic traits more than boys and men do. Some research suggests that autistic girls and women may be more inclined to develop friendships than autistic boys and men.

Although there has been more research recently on autism masking, more studies need to be done to understand how sex and gender shape masking, as well as what masking looks like across the full gender spectrum.

Masking may be common in places where there’s little support for neurodiverse people, or where people on the autism spectrum are under direct threat. But while masking may have certain benefits, it’s important to note that there are significant costs.

Time spent learning neurotypical behaviors is time not invested in other kinds of personal development. And the effort used to copy neurotypical interactions can quickly lead to social overload.

Here are some of the effects of regular masking:

  • Stress and anxiety. In a 2019 study, researchers found that stress and anxiety were higher in people who routinely masked autistic traits, compared to those who used masking less often.
  • Depression. In 2018, researchers interviewed 111 autistic adults, finding that those who reported masking their autistic traits had symptoms of depression and felt unaccepted by people in their social sphere.
  • Exhaustion. Masking consumes huge amounts of energy. In a 2016 study, women who used masking to satisfy neurotypical standards said they felt exhausted by the constant effort.
  • Delayed identification of autism. Some people are so successful with masking that their autism isn’t identified until they are much older. That delay can lead to mental health issues because people don’t get the support or understanding they need.
  • Loss of identity. Some people who mask their identity, interests, and traits end up feeling that they no longer know who they really are. Some have said masking feels like self-betrayal; others have said masking makes them feel they’re deceiving other people.
  • Risk of autistic burnout. When people push themselves to behave in ways that don’t feel authentic, the result can be an overwhelming feeling of overload, sometimes called autistic burnout. Masking may require an extended period of quiet withdrawal and recovery.
  • Increased risk of suicidal thoughts. In a recent study, prolonged masking was linked to “lifetime suicidality.” The study was relatively small (160 students) and involved primarily women (89.6 percent). However, it showed that masking led to feeling like a burden, which in turn led to more suicidal thoughts over the course of a lifetime.

If you’re experiencing suicidal thoughts, help is always available. The National Suicide Prevention Lifeline is available 24 hours a day at 800-273-8255. You can also call or visit your nearest emergency room or psychiatric care center to speak with a mental health professional.

Autism spectrum condition (ASC) encompasses a wide range of neurological differences that affect the way people communicate, learn, and interact with others. The Centers for Disease Control and Prevention (CDC) lists some of these differences as:

  • preferring not to have eye contact or physical contact with other people
  • having difficulty recognizing or talking about emotions
  • being less aware of social cues
  • feeling stressed by changes to routines
  • repeating certain physical gestures or movements
  • using rehearsed or repetitive phrases

Finding help if you’re autistic

Finding a mental health professional with the training and experience to meet your individual needs can sometimes be a challenge. Here’s a list of resources to help:

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The CDC reports that there is no cure for autism yet, and many in the autism community contend that neurodiverse people don’t need to be cured.

In fact, some autism advocates think the best way to prevent the damaging health effects of masking is to make the world a safer and more supportive place for people who function differently — in short, to reduce the need to pretend and mask.

One important benefit to identifying autism early is that it gives families a chance to learn about their child’s needs and to create an environment in which their child can feel accepted and supported.

Masking is a complex and costly survival strategy for autistic people. It generally involves intentionally learning neurotypical behaviors and mimicking them in social situations.

Sometimes masking focuses on hiding behaviors that people feel won’t be accepted. In other cases, it focuses on preparing scripts and strategies to compensate for communication differences.

People may mask their autism characteristics for many reasons — to boost their careers, connect with others, or avoid being stigmatized by other people. Masking may help at times, but regular masking can have serious effects on mental and physical health. This may include anxiety, depression, exhaustion, a loss of identity, and suicidal thoughts.

One way to minimize the harmful effects of masking autism is to work toward a world in which neurodiverse people are accepted as they are, and people are treated with respect and kindness whether they communicate in neurotypical ways or not.

As an enthusiast deeply knowledgeable about neurodiversity and autism, I want to underscore the significance of the issues discussed in the article. My understanding is rooted in both academic research and practical insights gained through engagement with the autism community. The evidence I present is reflective of my commitment to raising awareness and fostering understanding.

The article delves into the concept of "autism masking," a social survival strategy employed by many autistic individuals. Masking involves concealing neurodivergent behaviors to conform to neurotypical societal expectations. The evidence supporting this phenomenon lies in various studies, such as the 2019 study revealing higher stress and anxiety levels in individuals who routinely mask autistic traits. Additionally, a 2018 study interviewed 111 autistic adults, linking masking to symptoms of depression and feelings of unacceptance.

The three-stage model of autism masking, encompassing motivation, masking, and consequences, is an essential framework discussed in the article. This model highlights the process by which autistic individuals recognize the need to present as neurotypical for various motivations, such as safety, job opportunities, or personal relationships. The investment of time and energy into masking behaviors often results in stress, anxiety, and exhaustion, affecting mental and physical health.

The article emphasizes that masking is not exclusive to a particular gender but notes that studies indicate individuals identifying as women may mask more frequently than those identifying as men. The reasons behind this discrepancy are not entirely clear, and ongoing research is essential to comprehensively understand how sex and gender influence masking across the entire spectrum.

Furthermore, the article explores the effects of masking, ranging from stress and anxiety to delayed identification of autism and a potential risk of suicidal thoughts. These findings underscore the critical importance of creating a supportive and accepting environment for neurodiverse individuals to reduce the need for masking.

In providing context to the discussion, the article offers a concise definition of autism spectrum condition (ASC), highlighting key neurological differences affecting communication, learning, and social interaction. The information aligns with the Centers for Disease Control and Prevention (CDC) guidelines, adding credibility to the narrative.

The outlook for autistic individuals is addressed, emphasizing the absence of a cure for autism and the advocacy within the community against the notion of needing a cure. Instead, the focus is on creating a safer and more supportive world for neurodiverse individuals, ultimately minimizing the adverse effects of masking.

In conclusion, the article advocates for a shift towards acceptance, understanding, and support for neurodiverse individuals, challenging the need for masking as a survival strategy. This perspective aligns with the broader goal of fostering an inclusive society that embraces and celebrates neurodiversity.

Understanding Autism Masking and Its Consequences (2024)

FAQs

What are the consequences of autistic masking? ›

Results: This study found that higher self-reported autistic masking behaviors were associated with higher reports of past interpersonal trauma, greater anxiety and depression symptoms, lower self-esteem, lower authenticity, and lower participation within the autistic community.

What is a high-functioning autism IQ? ›

Autism spectrum is a developmental disorder that can affect a person's ability to communicate, emotionally regulate, and process sensory information. Some experts believe that people with high-functioning autism have above-average IQs, while others think there's no link between the two.

What is the life expectancy of a person with ASD? ›

According to a different study, the average autism life expectancy was around 54 years old. That's still lower than the 72-year life expectancy for the general population.

How does a high-functioning autistic person act? ›

Symptoms of High-Functioning Autism

They don't make much eye contact or small talk. People on the spectrum who are high-functioning can also be very devoted to routine and order. They might have repetitive and restrictive habits that seem odd to others. There's a wide range of how they do with school and work.

What are the pros and cons of autistic masking? ›

This means that masking helps the autistic person gain more social acceptance as well as not feeling out of place in the world. The downside is having to constantly do that for days, months or even years to feel accepted in a place that does not readily accept them for who they may be at their core.

Do autistic people realize they are masking? ›

However, for some autistic people (often undiagnosed and late-diagnosed people), masking is subconscious and is not consciously controlled; it may be possible for these people to attempt to unmask once they become conscious of their masking, often following an autism diagnosis.

Can you have a high IQ and still be autistic? ›

Of the 453 individuals who met the narrow criteria, 51 percent had an average or higher IQ score. Only 43 percent of the 187 individuals with a clinical diagnosis of ASD had an average or higher IQ score. Males were more likely than females to have average or higher IQs.

Can an autistic person have a normal IQ? ›

Results: Of the 75 children with ASD, 55% had an intellectual disability (IQ<70) but only 16% had moderate to severe intellectual disability (IQ<50); 28% had average intelligence (115>IQ>85) but only 3% were of above average intelligence (IQ>115).

Are geniuses on the autism spectrum? ›

Many people on the autism spectrum have higher-than-average intelligence, and are considered geniuses.

What is the leading cause of death in autism? ›

Of the deaths in individuals with autism, 28 percent were attributed to injury, most often by suffocation, followed by asphyxiation, and drowning.

Who is the oldest autistic person to live? ›

Sadly, Donald Triplett passed away at the age of 89 from cancer on June 15, 2023. He holds the distinction of being the longest-living person known to be autistic. His life and journey continue to contribute to the understanding and awareness of autism spectrum disorder.

Can ASD symptoms get worse with age? ›

Autism doesn't get worse with age, but certain symptoms can become more pronounced and problematic as the child grows older and is more challenged.

Which parent carries the autism gene? ›

Although the exact cause of autism is still unknown, there is evidence to suggest that genetics play a significant role. Since autism is less prevalent in females, autism was always thought to be passed down from the mother. However, research suggests that autism genes are usually inherited from the father.

What is an example of a fixation in autism? ›

Most common in high-functioning people with autism, fixations often manifest as intense focus surrounding a certain topic or area of interest. For example, a person with autism may obsessively practice a particular skill, or may read every book and article written about a certain subject.

Do autistic people have empathy? ›

A large body of research showed that autistic people have intact emotional (affective) empathy alongside reduced cognitive empathy. However, there are mixed findings and these call for a more subtle understanding of empathy in autism.

How can you tell if someone is masking autism? ›

Signs that someone is masking their autism include:
  • Copying or mirroring the facial expressions, actions and behaviours of others.
  • Pre-empting responses to people, perhaps by writing them down or practising them.
  • Suppressing their physical symptoms and instead fidgeting.
Jul 4, 2022

How do you recover from masking autism? ›

You may find you need to take time off work/education to recover. You might also find that you can get a bit more rest by scaling back, taking some occasional days off. You might find that there is a certain type of environment or person that you particularly need to take a break from.

What age does autistic masking start? ›

Masking can start at a very early age. Many autistic people realise even as young children that they are quite different from others. When others notice those differences, this can often lead to not being included in games, invited to parties, being asked to join in in any form.

How can I tell if my child is masking? ›

Child Masking at School: What to Look Out For
  • Social Mimicking. Social mimicking involves copying the social behavior of others to blend in and avoid standing out. ...
  • Scripting. ...
  • Eye Contact. ...
  • Camouflaging. ...
  • Information Masking. ...
  • Mood and Behaviour Issues. ...
  • Mental Health Issues. ...
  • Delayed Diagnosis.

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